Two weeks today!!!

Shania's been getting progressively worse with Mucositis( Chemo caused this when she got sores on the inside of her mouth and esophagus, and was constantly spitting up thick phlem through out her Bone Marrow Transplant.) It started to gradually go away after she was discharged from the hospital, the only time it would bother her was when she would eat certain foods. But now it seems to be getting worse , we don't know if it is because she has a cold/sore throat or if she has this fungal infection coming back. She has lost some weight, from 63LBS to 57LBS which is less than her sister now. This is a concern to Karen and I because she has zero percent body fat on her to start with. Karen and Shania went down to Sick Children's Hospital on Thursday, and right away Dr Baruchel was concerned about Shania's weight loss. So he ordered x-rays to see if they could see if she has an infection in her sinuses again. They gave Karen a prescription of antibiotics just in case it did turn out to be an infection. Also Shania got a hearing test done, while she was there, and we got some great news from that, they said that some of her hearing has come back, ever so slightly. Which is huge to us because they were saying that she would most likely have to get hearing aids.(The chemo not only makes you loose the hair on your head but also the hair follicles on the inside of the inner ears, thus the hearing loss). "Another one of those moments again", but that was short because we are still concerned about this possible infection. Later that day Julie (nurse coordinator) called and said that Shania should start her antibiotics because they are seeing something there. They will let us know when she can get in for a Ct scan to look into it further. She has gained back a pound since then and seems to be able to eat her food a little better.
We are all very excited about Shania's Sunflower of Hope Fun Fair which is two weeks today!!! We just came in from the garage, where we were working on Shannon's lemonade stand. Wednesday we met the bouncy castle people at the Markham Fair grounds so we could verify the set up. One is called the Fun Fair Park and is 68 FT long, we will have six in total . Also tons of games to be played in the Chucky Cheese style, where you win tickets to be redeemed for prizes at the prize booth. I will try to do more updates on Shania's condition and the Fun Fair, for the next couple of weeks.
Sincerely,
Shayne, Karen, Shania & Shannon.