I will love you forever

Shania had radiation on Friday to slow the progress of a tumour and alleviate the severe pain that she is getting from it. This tumour is on her spine right at the pelvis area and is squashed up against a bundle of nerves. She has been bed ridden for two weeks up until this point on her one side, not being able to move without excruciating pain even with the three different types of strong pain medication that she was on. The Doctors and nurses say that she is a very strong spirited little girl and she definitely needed it to get through all of the tests and scans that she had in the last two weeks, on top of everything else that is going on with her leading up to this radiation. After Shania got the radiation it seemed that she slept much better that night, and on Saturday she was able to move around and even was able to lie on her other side, which was in so much pain before that. Karen, Shannon and I were so glad that the radiation worked because it is so heartbreaking to seeing her in so much pain and you can't do anything to make it better. Sunday Shania was up to having visitors, and her Aunt Bonnie and Uncle Billy (as she calls him) stopped by with her Nanna and Grampa coombs. Her Aunt and Uncle are out from Newbrunswick visiting and it was great timing for Shania that they stopped by. Also Grandma, Grandpa Johnston and Auntie Dan Dan(My sister) popped in for a visit. Shania was very happy to see them all. Shania and Shannon got lots of pictures of everyone thanks to a very thoughtful gift of a camera from Syd Birrell and the Londons, a family from New York City, whose Four year old daughter Penelope has Neuroblastoma also. Thanks again this definitely lifted our spirits when we needed it most. Shania slept very soundly Sunday night which is what she needs after all that she has been through. Dr Baruchel talked to us yesterday, and said that the CTscan showed that the spots on her lungs have gotten larger, so they want to do a Bi-opsy on Wednesday to find out what these spots are. They did a ultra sound and say that there are a couple of spots that they should be able to get at with a needle. Shania's blood work started to en-graft on Sunday with her White blood cells, Polies and Hemoglobin counts all coming up. Only her Platelets went down but they always seem to be the last ones to come up. The Pain Team as they call them, took her off of the Morphine and ketamine pain medications yesterday, so they were able to remove most of the probes and monitors also. which is another positive for Shania. Karen and Shania went for a walk yesterday, albeit that Shania was in a wheel chair, it is great to see that she is out of bed again.
Dr Ruth (music therapist) stopped by Thursday. Earlier in the week she had asked Shania if she would like to write a song. Shania thought that this was a great idea and wanted to write it for Karen as a surprise. So when Dr Ruth came back on Thursday, Shania had already written her song and they did a rehearsal. Then they called Karen in and played it for her. And this is the title "I will love you forever". Dr Ruth says that she can record Shania and her, and put it on a CD for us. Karen said that she was very touched by this song. I will ask Shania if she minds if we put the rest of the song on the blog.
I do believe in Shania I do I do!
I do believe in Shania I do I do!!
I do believe in Shania I do I do!!!
Sincerely,
Shayne,Karen,Shania&Shannon.