Meagan's wonderful walk on Mothers day

Shania got a room Thursday night and her health has gradually declined since then she was having extreme pain in her left leg and the doctors are going to do a Bone Scan to see if they can find a reason why. Karen and I don't want to jump to any conclusions but we suspect that it is the cancer that is causing all of this pain. She has lost more weight and and is now on TPN(Total Parenteral Nutrition ) which is feeding her by IV. A GI specialist is coming today(digestive track specialist) to consult with the Doctors to see if she has some kind of infection in her esophagus or stomach, they are giving her Zantac for a possible stomach problem and hopefully we will get some answers as to why she still is having trouble with this mucositis and can't eat without her food getting stuck every time she tries to eat food. Dr Baruchel is personally calling a child Psychologist to come and help Shania cope with everything that is going on, she is feeling very frustrated and angry with everything that is happening with her write now. One of the things that she was frustrated about was that she didn't get to do the Meagan's walk which was on Mother's Day. Karen and her had watched a show on Meagan's walk while Shania was in isolation having her Bone Marrow transplant. They were both very touched by her story and the walk that they have in her honour to raise awareness and funds for pediatric brain tumour research at Sick Children's Hospital. Unfortunately Shania right now can't even get out of bed and Karen has a pinched nerve in her Shoulder since last week, which is giving her severe pain right down her whole arm. Shania said that she wished she could have gone even in a wheel chair but unfortunately she isn't well enough for that. I asked Karen and Shania if Shannon and I could go in there place and if they could sponsor us for it. Which was the next best thing to them actually going. So Saturday night my sister Danielle came down to Sick Children's Hospital and had a sleep over with Shania, so that Karen could drop Shannon and I off at Ontario Place where Meagan's Walk begins. Shannon Brought her little pink Barbie Scooter with her. With big hugs and kisses off Shan and I went. They have the registration under the big orange tent there and it was a busy place lots of music, food and drinks. They gave us a t-shirt once we got registered and as we were walking around enjoying the atmosphere of all these happy people here for a great cause, we met up with a friend LeeAnne Curtis whose five year old son Cyle also has Neuroblastoma Stage four, next we met up with friends Mark and Julia Wickwire and there two wonderful children Laura and Michael. They asked Shannon and I if we would like to join there group, which was representing Denlow Public School . Julia is Friends with and also went to school with Denise whom is Meagans mother. So it was with great honour that Shannon and I joined this group of fine people. What a beautiful day it turned out to be for this great event, Shan scootered and walked the whole five K route only stopping once for some sunchips to refuel herself. At one point along the route we past a group of people that were all hugging each other and crying in fond memory of someone who had past away from cancer. It was hard not to think of our Shania at this point and I must say that I shed some tears also, I tried not to get to upset for fear of upsetting Shannon on this most Worthy walk. Once we got to the Hospital we went to the side that Shania's room is on. We called up to Karen and Shania so we could waive to them from the street, Karen and Our friend Hiedi waived down to us, Shania wasn't able to get out of bed unfortunately. Next Shannon and I were joined by my Father and stepmother sandra whom were also there visiting Shania, we joined hands with everyone to form a circle around the hospital and give it the biggest hug imaginable, after that we said our good bye's to my Dad and Sandra and took a walk around in all of the festivities going on, and met up with Sarah Legault from Sickkids Foundation, she was helping in the running of this great cause meagans walk, she also helps run the James fund where we first met her and she helped us with Shania's fun fair. Sarah has been a great support to our family, Shania and Shannon are quite fond of her and once Shannon spotted her she ran up and gave her a big hug and kiss. Sickkids is lucky to have such fine individuals as Sarah working for them. She walked with us around the hospital and we happened upon a bucket of chalk, Shans eyes just lit up and she wanted to write something on the sidewalk along with the hundreds of other things that other people had written and the first thing she wrote was Shania, Oh boy ! my eyes started to well up once again. Then she wrote Mommy, Daddy and finally Shannon. After that Sarah walked us to the elevators and we went up to see Shania and Karen. I would have to say that Megagan's walk is an truly uplifting experience and we look forward to doing it as a whole family together. this is there web site if you are interested in joining us next year. http://www.meaganswalk.com/ Shania and Shannon's Aunt Sandy is down visiting from Nova Scotia. She stopped by to see Shania at the hospital on Sunday along with my cousin Doug, she has just recently found out that the cancer in her liver has spread to her bone and bone marrow and she wanted to visit family and friends out here before she starts her next round of chemo treatments. My Aunt, her friend Carol and my cousin Robs girl friend Cathy drove from out east for this visit. I can only try to guess how much pain she must be in, and then to drive that distance to see friends and family, talk about true grit, now I can see were Shania gets it from it's in her blood. Thank you Aunt Sandy for stopping by you are truly inspirational and we love you deeply. I just talked to Karen and she Say's that Shania is in a little better spirits today, she was just about to go down for a Cat scan. I am going to pick up her Friend Jacklyn up from School to take her for a visit and Karen will bring her back, we hope that this will cheer her up a bit more.
With love sincerely,
Shayne,Karen,Shania&Shannon.